Approximately 9 months ago my child, who was born with a rare brain malformation, received an emergency waiver and it couldn't have come at a better time.  My beautiful child was regressing both developmentally and medically before my eyes.  You see he had been on the waiting list for the NOW waiver for numerous years, but as I sat holding my … Continue reading A Medicaid Waiver Story.. {A waiver saved my son, now we must save LA’s waiver program}

Four children have died in the past month.  Not just any four children, but four children that have the same rare disorder as my son.  And that scares me.  Our children's lives have an early expiration date. You see, this rare disorder has had the potential of taking their life since they were born.  Upon diagnosis the doctor comes in … Continue reading When your child’s life has an early expiration date.

I've been an opinionated momma for the past 10 years or so.  I ensure that my children are loved and well taken care of everyday, and I don't bite my tongue when I see an injustice.  This momma bear instinct in me has grown into other areas of my life where my emotions can run … Continue reading Gaining Grace {Incorporating His grace in my every day life.}

I sit here listening to sounds of the machines trickling, humming, beeping.  I sit here looking around at the equipment, hospital beds, chairs, outlets.  I sit here taking all of you in, absorbing all of the calming peace that you exude, albeit just two hours earlier you were lying on an operating table. As I lie next … Continue reading My Heart is Content…

Dear Humanity, A few days ago I experienced various situations where I was discouraged by the behavior/demeanor by fellow humans.  It really got to me.  But I want you to know that despite how discouraging it was, I'm not giving up on you. I attended my sister's college graduation the other day.  I was the beaming proud big sister … Continue reading Dear Humanity, I’m not giving up on you.

My Dear Child, I have a confession. Through the 8 years you have been in my life I have prayed and longed for you to be healed from all of your diagnoses, illnesses, and struggles.  I have yelled at God for allowing my sweet, innocent baby to come into this world with such life altering afflictions.  … Continue reading My Dear Child, I have a confession…

Well I did it.  I have officially started my own blog.  Whew.  This was a long time coming... Thanks to the many of you out in FB land who voted on my blog name.  The winning name was "Put a Corkern In It" with an astounding 279 votes.  Wow, I know.. You are probably seeing that isn't what I … Continue reading Dude! Welcome to my new BLOG!