An Open Letter to Legislators Voting on a Cannabis Bill..

Dear Legislator, I am writing to you as a mother- a heartbroken mom to a child with uncontrollable seizures.  I am writing to you in hopes of YOU being a part in saving my kid's life.  Please hear me out... My son was born with a rare brain anomaly and because of it he suffers from … Continue reading An Open Letter to Legislators Voting on a Cannabis Bill..

A Medicaid Waiver Story.. {A waiver saved my son, now we must save LA’s waiver program}

Approximately 9 months ago my child, who was born with a rare brain malformation, received an emergency waiver and it couldn't have come at a better time.  My beautiful child was regressing both developmentally and medically before my eyes.  You see he had been on the waiting list for the NOW waiver for numerous years, but as I sat holding my … Continue reading A Medicaid Waiver Story.. {A waiver saved my son, now we must save LA’s waiver program}

When your child’s life has an early expiration date.

Four children have died in the past month.  Not just any four children, but four children that have the same rare disorder as my son.  And that scares me.  Our children's lives have an early expiration date. You see, this rare disorder has had the potential of taking their life since they were born.  Upon diagnosis the doctor comes in … Continue reading When your child’s life has an early expiration date.

Gaining Grace {Incorporating His grace in my every day life.}

I've been an opinionated momma for the past 10 years or so.  I ensure that my children are loved and well taken care of everyday, and I don't bite my tongue when I see an injustice.  This momma bear instinct in me has grown into other areas of my life where my emotions can run … Continue reading Gaining Grace {Incorporating His grace in my every day life.}

Christmas and Kids: What they need to know.

Christmas.  A time when we Christians celebrate the birth of Jesus Christ.  It is a time when we surround ourselves with loved ones exchanging gifts amongst the traditional Christmas tree full of lights and decorations and it is also a time to give back to others.  It's truly a beautiful time of year. However, this beautiful time of … Continue reading Christmas and Kids: What they need to know.

My Heart is Content…

I sit here listening to sounds of the machines trickling, humming, beeping.  I sit here looking around at the equipment, hospital beds, chairs, outlets.  I sit here taking all of you in, absorbing all of the calming peace that you exude, albeit just two hours earlier you were lying on an operating table. As I lie next … Continue reading My Heart is Content…

Dear Humanity, I’m not giving up on you.

Dear Humanity, A few days ago I experienced various situations where I was discouraged by the behavior/demeanor by fellow humans.  It really got to me.  But I want you to know that despite how discouraging it was, I'm not giving up on you. I attended my sister's college graduation the other day.  I was the beaming proud big sister … Continue reading Dear Humanity, I’m not giving up on you.

Back to Being “Us”

There once was a time when my husband and I were a fun loving, care free couple who were madly in love and the world was at our fingertips.  It was a time of dating, learning each other's quirks, laughter, flirting, snuggling, and just plain FUN!!  This very short lived time is engrained into my mind … Continue reading Back to Being “Us”

The Dad Behind the Diagnosis

When you become a parent it changes you.  But when your tiny, brand new baby is given a life altering diagnosis that thrusts you into the world of special needs it really changes you.  Some people change for the better and some change for the worse.  Your relationship with your spouse can get stronger or it can fall apart.  The first … Continue reading The Dad Behind the Diagnosis

My Dear Child, I have a confession…

My Dear Child, I have a confession. Through the 8 years you have been in my life I have prayed and longed for you to be healed from all of your diagnoses, illnesses, and struggles.  I have yelled at God for allowing my sweet, innocent baby to come into this world with such life altering afflictions.  … Continue reading My Dear Child, I have a confession…